Read old posts from this blog here....

Friday, November 9, 2007

Let's start back in April of 2007

Life was going great back in April of 2007. We were in the process of building a new home, and just getting used to our new life in Colorado. Our plans were to spend the summer swimming and vacationing, and then in the fall both of my kids would be in school all day and I would go back to work part time, or start taking some classes at the college.
But then we received some news that would change our plans slightly. I found out I was pregnant. After the initial shock wore off, we were all very excited. I have a 9 year old daughter and a 6 year old son, so there would be a bit of an age gap. But I was excited about that as well because this time around I'm going to have some built-in help :)
About 6 weeks into my pregnancy I started getting very sick. Typical morning sickness stuff I guess. I was nauseous 24/7, and so exhausted all the time. I was counting down to week 12 hoping it would pass after the first trimester. Around the 8th week of my pregnancy I was rubbing the side/back of my neck when I noticed a slight lump.
So that's where it all started. I'm going to cut out some of the details (to save my fingers from typing) but here's what happened. I was referred by my OB/Gyn to a family practice doctor. She took blood tests and decided I needed to see an ear/nose/throat specialist. I saw one here in Grand Junction, but after his insistence it was"probably" nothing, I decided to pursue a 2nd opinion in Salt Lake City at the Huntsman Cancer Institute. (Always follow your inner voice if it tells you something is not right!)
I saw a wonderful ENT doctor at Huntsman. He scheduled a CAT scan (They had to shield my stomach for the baby, so it was just the neck and up) and needle biopsy to be done right away. I was supposed to go back and get my results 3 days later, but I called after 2 days because I thought they could just give me the results over the phone and then we could head back to Colorado and be done with it all. I really thought it was nothing.
When I called the nurse she said the doctor wanted to schedule some more invasive procedures. And when I asked why she said that on the CAT scan all of my lymph nodes were enlarged and the biopsy cells were irregular. I hung up the phone and in that moment everything in my world just went black. All the sudden I could see my own funeral. I could feel a deep sadness. I really lost it emotionally because this is one of the moments you think "that would never happen to me. It's not in your plan, you are totally not prepared for this and it can't be happening. Oh yea, and you're pregnant. " That was my internal thoughts over and over.
But honestly, after I gave myself a little time to adjust, I just let my inner fighter kick in. And I strongly relied on the support and love from my family & friends. Larry has been my rock. I feed off of his strength at all times and it really gets me through.
So the next procedure was an in-patient lymph node biopsy, and then I was to follow up with an Oncologist at Huntsman the following week.
So a week later me and my "entourage" (husband, parents & brother) went to see Dr. Martha Glenn. She is a lymphoma specialist at Huntsman. My appointment that day was scheduled to be a couple of hours, but ended up being all day long. By this point in time it's around July 30th and I am about 5 months pregnant. I was diagnosed with Non-Hodgkin's B-cell follicular lymphoma. Indolent, grade1, non-curable. They did a bone marrow biopsy and a chest x-ray that day. I did have slight traces of cancer in my bone marrow, but my chest x-ray showed my lungs were clear of any tumors. Because of the cancer in my bone marrow it automatically put me at stage 4 of the disease. Dr. Glenn told me it was a little unusual for me to get this type of cancer so young (age 34). She said the median age was around age 60. The treatment for this type of cancer is chemotherapy, but because the cancer was indolent (very slow growing) and was not affecting my overall health at this point, her suggestion was to "wait and watch". I was thankful for the extra time so I could finish my pregnancy before injecting poison into my system to fight the cancer.
So that's where we've been since the end of July. Watching and waiting. I am being induced a month early to have my baby. It's a little girl, and we decided to appropriately name her Hope. I am going to deliver at the University of Utah. My doctor there (Dr. Esplin) is a high-risk OB and feels that due to some other"pregnancy" related complications it would be best to deliver as soon as safely possible.
On November 19th we have an appointment for an amniocentesis and ultrasound. Dr. Esplin will check for lung development at that time. He said if it shows her lungs are developed there's a 99% chance she will go home with us from the hospital. If the lungs are not developed, I will start some steroid shots, and we will deliver a week later.
As soon as the baby is born, I will then have a full body CAT scan to see exactly where the cancer is in my body. I am going to see a doctor at Stanford University on December 14th. Stanford has an excellent lymphoma clinic with lots of trials and lots of cutting edge technology. As I near the end of my pregnancy, I feel "fighter mode" coming back on, and I want to find out what my best possible options are to fight this cancer. It may very well still be to watch and wait, but I really wanted another cancer center to read my pathology and confirm the diagnosis. And I also wanted to talk to a doctor involved in research to see if I am getting all of my possible options so me and my family can make a sound decision on how to proceed.
As weird as it sounds, since my diagnosis, one thing I have felt more than anything else is thankful. Of course I've had my break down moments of tears and tears and more tears. But they are few and far between because of the support system I have. I am not going through this alone. There is an Army of people standing next to me at the front lines of this battle just as ready to fight.
Either I, my husband or my mom will continue to update as we go along. I wanted to start something so I could keep track of my journey, but also for all that have asked how things are, or want to stay updated. I thank all of you for your thoughts and prayers.

10 comments:

Anonymous said...

Hey Jen,
I am so glad you put this together. Thank you for for doing so. As soon as I can find out what Kathy from BUNCO's e-mail address is, I am going to forward this on to her. She asked the other night how you were doing. It looks like you are doing great. I know there are hurdles to cross, but you are, as usual, handling them like a pro. Attitude is the key. You should probably write your own book. I looked at the list, and I thought how do people do it? Then I realize, they must be people like you, people who realize life is for living, and then they get to work on LIVING.
Have you joined or started a new BUNCO group? Did Janell tell you about the big BUNCO Bash that we attended out at the mall last month? It was to help raise money for an organzation that helps mothers deal with neonatal losses. I know you would have loved it.
We sure miss you guys. You left an indelible mark on the lives of us in Emporia. I hope that someday, after all your trials are over, you can find time to come back for a visit. Gosh, it's been over a year already, hasn't it? We can all get together for some poker, BUNCO, and of course good food and catching up.
Jen, please keep your spirits up, and I will keep you and your family in my prayers. Tell Larry hello and not to work too hard. Your house is beautiful. How about some pictures of the inside? Oh, never mind, I'll probably be jealouse, nah, go ahead, I'd love to see them. You have such good taste. You know, my favorite channel on TV is HGTV. I watch it religiously. I'm always looking for ways to fix this old place up. We're almost finished with the bathroom, It's been about a year and a half; we're a little on the slow side, but I'm loving it. It took less time for you to build a whole house than it did for us to do our little old bathroom. :)
What are your plans for Thanksgiving? Don't work too hard, but be sure to eat lots!
Love you, and may God bless,
Sherry

Anonymous said...

Hey Jenn,

This is an awsome start to your fight for this. I have no doubt in my mind that you will make it through this one. You guys are such a wonderful family and maybe god just wanted to test your stregth. He works in weird ways. I had an idea of what was going on but now that I read the blog it really touches me. You and your family are such positive people and you always get positive things out of a positive attitude. I like the new house. It is very pretty. I helped Jason a little with doing some touch up paint in your old house for sutherlands and that was a beautiful home also! You are such an idol Jenn. I know that everything will go well for you and your family. The kids are also getting alot bigger so fast. It is amazing how they grow. Well I will keep in touch and I do now even have to tell you to be strong it looks like you Larr, and your family have that one down already. Good luck to you and your new baby girl. I want to see some pictures of her if you get a chance. Talk to yaou later!

-Linds

Anonymous said...

Hey Jenn,

I'm really glad you put this page together. Jason has been filling me in on what's going on but it's nice to hear it first hand. You are without a doubt the most positive person I know! I know that your faith and all the love of your family and friends will see you through this.
Your new house is beautiful! And the kids are growing so fast -- great Halloween pics! You should have dressed up as a pregnant nun -- how funny would that be?! Paige was a fairy witch, John was a skater punk zombie, and Hayden was a zombie. We had fun trick or treating with Jason's family in Carbondale this year.
How far along are you in your pregnancy now? Do you have some good sono pictures of the baby? I'm so happy you're having a little girl -- they're so much fun! Are the kids anxious to meet the baby? I love the name Hope. I'm sure she'll be another blond haired beauty like Lauren!
Have you done much scrapbooking? I'm sad to say I've been falling behind. I need to channel your creativity to get me going again.
We're getting ready to do a couples Bunco in December. I can't wait for Jason to see why it's so much fun.
We miss you guys very much! I miss getting together for dinner and board games while the kids play. Please continue to take care of yourself and gets lots of rest. We are praying for you and your family.

Love,
Erica

Anonymous said...

Oh Jen! I love this! I love hearing about you and the Fam. You are such a go getter! GO JEN BEN! The kids look great and Hope is going to be beautiful, I can feel it. I am sharing your story with some friends from St. Louis and they are going to follow your journey too. The more prayers the better. Keep up the faith! You are such a strong girl, mom, women, friend, you are gonna fly through this.... I miss you and if you wanna talk give me a call.
Tell the fam Hi and give them a hug! Love, Jen Kamp
Remember when we used to play Bunco....that was fun HUH!

Anonymous said...

Hey Jen,

Thank you for putting this together so that all of us here in Kansas and everywhere else and keep in touch with you. You are a very strong person and you have a lot of people praying for you. You will make it thur this. You couldn't of picked a better name for you little girl. Lauren and Josh will be great helpers and will show her all the right ropes to take. lol. Stay strong. Love the Wallace Family.

Anonymous said...

Hi Jen and Fam,
We miss you guys. We are praying and hoping that everything goes good. We keep an eye on your house so far no one has seen us coming in and out, so all is good with us too! You didn't leave any milk though...
We keep checking for updates, so update already!
Love,
the kearls

Anonymous said...

Hey Jen,
This blog is such a great way to keep everyone updated. It's so nice to have a place to check in on you. I hope your trip over was good. I'm sure it's nice to have a little down time before the big event takes place. Hopefully you and Larry and the kids have been enjoying yourselves. I think of you often, and just wanted to send lots of love your way. We miss you over here. Keep us up on how things go Tuesday.
Love,
Sylvia and all the Reis's pieces

Anonymous said...

Well we have checked all day wanting to hear if that baby is crying or just waiting??
How are you guys doing?
We hope you have a very Happy Thanksgiving!
Love the Kearls

Anonymous said...

Jen and Larry: You are such an inspiration to all of us!!!Please know that you are in our thought's and prayers. Hope is absolutely beautiful!!! As are Lauren and Josh. They grow so fast don't they?God bless!!! All our Love,Sean & Melissa

Anonymous said...

Hi Jen,
Your web site is great. I loved the pictures of everyone. Good luck next week. I look forward to what the experts there have to say.
Take care of you and your little family. Tell Larry Hi.